Things I've Learned from Spina Bifida

As I was putting Rachel down to bed last night, I realized that her AFO's needed some adjustments. The velcro was coming off; the moleskin was wearing thin; the straps needed some trimming. So, I sat down to do the work of refurbishing an AFO, and I realized, this is something I couldn't do "before".

In many ways, my life has been sliced right down the middle, now marked by "before" and "after".

Now, I can refurbish an AFO. I ever KNOW what an AFO is and does.

Now, I can tell you what "Myelomeningocele" means. Heck, I can even spell it without looking it up.

Now, I can insert a cath, at least for a little girl.

Now, I can rearrange my schedule to fit in four therapy sessions week.

Now, I can fully explain Hydrocephelus, a VP shunt and tell you the signs to look for a malfunction.

Now, I do a butt-flap.

Now, I can get in three massages on little toes that don't wiggle.

Now, I think ahead and make sure there will be a cart (store) or take my stroller.

Now, I know that sneakers are really the only shoe option for my little girl. No cute little sandals or little ballet flats.

I know to find shoes that fit well over her AFO's.

Now, I can put on a rhino brace for the hips. (And by the way, wouldn't it make more sense to call it a "hippo brace"?)

Now, I can laugh.

Now, I can be thankful for life.

Now, I can praise God for everyday gifts.

Now, I can find beauty in the malformed.

Now, I know that life is more than feet that work.